What is LivingwithSaroidosis.org?
LivingwithSaroidosis.org is a dedicated patient-to-patient support community for patients and families affected by Sarcoidosis. LivingwithSaroidosis.org is powered by BensFriends.org, a group of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Sarcoidosis.
Who can join LivingwithSaroidosis.org?
If you or your family has been affected by Sarcoidosis, consider LivingwithSaroidosis.org your second home. LivingwithSaroidosis.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is Sarcoidosis?
Sarcoidosis is the growth of tiny collections of inflammatory cells (granulomas) in different parts of your body — most commonly the lungs, lymph nodes, eyes and skin.
Doctors believe sarcoidosis results from the body’s immune system responding to an unknown substance, most likely something inhaled from the air.
There is no cure for sarcoidosis, but most people do very well with little or only modest treatment. In half of cases, sarcoidosis goes away on its own. In a few cases, however, sarcoidosis may last for years and may cause organ damage.
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an Arterio-Veinous Malformation (AVM). He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, Bens Friends provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives. Bens Friends is supported by donations from its principals and community.